EUROPEAN PARLIAMENT ATTACKS EU’S WOEFUL RECORD ON RARE DISEASE CONTROL
April 1st, 2009
BY KEITH NUTHALL
THE EUROPEAN Parliament has called for a hastening and intensifying of reforms to how the European Union (EU) fights rare diseases, criticising the EU's woeful track record on this key health issue. Amending a formal set of guidelines for EU institutions and member governments, the parliament said: "Rare diseases contribute heavily to the death rate in Europe but often go unrecorded owing to weaknesses in healthcare data systems. Concerted action at EU and national level is needed to tackle this problem."
Noting in a report that there ...
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