EUROPEAN PARLIAMENT ATTACKS EU’S WOEFUL RECORD ON RARE DISEASE CONTROL

BY KEITH NUTHALL

THE EUROPEAN Parliament has called for a hastening and intensifying of reforms to how the European Union (EU) fights rare diseases, criticising the EU's woeful track record on this key health issue. Amending a formal set of guidelines for EU institutions and member governments, the parliament said: "Rare diseases contribute heavily to the death rate in Europe but often go unrecorded owing to weaknesses in healthcare data systems. Concerted action at EU and national level is needed to tackle this problem."
Noting in a ...


Full access to this article can be arranged with permission from the client that first ordered it. Please contact us to request access. Entries are uploaded to our archive at least one year after being published by a client – free access is restricted to International News Services journalists for background research only. The article date indicates when copy was filed to a client, not when posted to this archive. Upon client requests, International News Services will remove such articles from the archive or not upload them in the first place. They are included to demonstrate the breadth of topics undertaken by the agency and also to help promote clients’ coverage.